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Lived Experience of Parastomal Bulging: A Mixed Methods Study.

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People living with parastomal bulging need better access to information and support for self-management. Further research into interventions like exercise is crucial to improve quality of life.

Keywords:
herniaparastomal bulgingparastomal herniaself-managementstoma

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Area of Science:

  • Stoma Care
  • Patient Experience
  • Self-Management Strategies

Background:

  • Parastomal bulging significantly impacts quality of life for individuals with ostomies.
  • It negatively affects stoma function, daily activities, body image, intimacy, and social engagement.

Purpose of the Study:

  • To explore the lived experiences of individuals managing parastomal bulging.
  • To identify current self-management interventions and support needs.

Main Methods:

  • Qualitative study involving interviews with 17 participants.
  • Quantitative data collection through an online survey completed by 61 participants.

Main Results:

  • Parastomal bulging detrimentally affects quality of life across multiple domains.
  • Access to specialist information and support for bulging is inequitable.
  • Support garments are common but confusion exists regarding exercise benefits for self-management.
  • Peer support cannot replace high-quality specialist care.

Conclusions:

  • Equitable access to information and support is essential for effective parastomal bulging self-management.
  • Further research is needed on interventions such as exercise to reduce reliance on support garments.