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The Pandemic Response Commons
Matthew Trunnell1, Casey Frankenberger2, Bala Hota2
1Open Commons Consortium, Chicago, IL 60607, United States.
JAMIA Open
|April 15, 2024
Summary
The Pandemic Response Commons (PRC) is a new data platform for epidemic research, built on open-source technology. It facilitates data sharing and analysis for researchers studying pandemics.
Area of Science:
- Epidemiology
- Data Science
- Public Health Informatics
Background:
- Data commons are essential platforms for managing and sharing research data within a community.
- The Pandemic Response Commons (PRC) was specifically designed to support researchers during epidemics and pandemics.
Purpose of the Study:
- To develop and implement a robust data commons for pandemic research.
- To establish a scalable and secure platform for managing diverse epidemiological datasets.
Main Methods:
- The PRC utilizes the open-source Gen3 data platform.
- A consortium of regional organizations was formed to develop and operate the PRC.
- Data governance followed NIST SP 800-53 standards, with a consensus data model for harmonization.
Main Results:
- A general PRC and a regional instance, the Chicagoland COVID-19 Commons, were established.
- Curated datasets include COVID-19 case statistics, clinical data, and viral variant information.
- The platform was configured for moderate security controls.
Conclusions:
- A PRC should be operational before an epidemic to ensure rapid response.
- Regional PRC instances can integrate into larger data ecosystems or data meshes for enhanced pandemic preparedness.
- The PRC provides a valuable infrastructure for collaborative pandemic research and data sharing.
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