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Related Experiment Video

Updated: Jun 28, 2025

The Multiple Sclerosis Performance Test MSPT: An iPad-Based Disability Assessment Tool
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Patient perspectives about multiple sclerosis: A metaphor study.

Esra Uslu1, Aysel Özsaban2, Şahika Ocak3

  • 1Department of Psychiatric Nursing, Faculty of Health Sciences, Eskisehir Osmangazi University, Eskisehir, Turkey.

Journal of Evaluation in Clinical Practice
|April 16, 2024
PubMed
Summary
This summary is machine-generated.

Patients with multiple sclerosis often perceive their condition negatively, viewing it as a manipulator or a follower. Understanding these perceptions is key for healthcare professionals to improve patient adaptation and care strategies.

Keywords:
metaphormultiple sclerosisperception

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Area of Science:

  • Neurology
  • Psychology
  • Qualitative Research

Background:

  • Multiple sclerosis (MS) presents diverse symptoms and prognoses, making individual patient perceptions crucial for effective care.
  • Metaphor analysis offers a unique lens to explore subjective experiences of chronic illnesses like MS.

Purpose of the Study:

  • To uncover and analyze patient perceptions of multiple sclerosis (MS) by utilizing metaphorical expressions.
  • To understand the lived experience of individuals with MS through their own descriptive language.

Main Methods:

  • A phenomenological approach incorporating metaphor analysis was employed.
  • Data was collected from 184 MS patients through face-to-face interviews using the prompt "multiple sclerosis is like… because…" between July 2022 and January 2023.
  • Content analysis was used to analyze the collected metaphors.

Main Results:

  • Five primary themes emerged: Manipulator MS, Temporal MS, Follower MS, Different MS, and Restorative MS.
  • Twelve subthemes provided further detail, including ambiguous, attritive, cyclical, perpetual, unaccepted, partner, ambusher, bittersweet, and unique MS.
  • The findings indicate a predominantly negative perception of MS among patients.

Conclusions:

  • Patients with multiple sclerosis frequently hold negative perceptions of their condition and its impact on their lives.
  • Healthcare professionals should leverage these insights to enhance patient adaptation strategies and improve overall care.
  • This research bridges the gap between theoretical understanding and practical application in managing MS.