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Published on: October 11, 2024
Exploring patients' experience using PROMs within routine post-discharge follow-up assessment after stroke: a mixed
B M P Mourits1, S J den Hartog2, J A de Graaf3,4
1Center of Excellence for Rehabilitation Medicine, UMC Utrecht Brain Center, University Medical Center Utrecht, and De Hoogstraat Rehabilitation, Utrecht, The Netherlands. b.m.p.mourits@umcutrecht.nl.
Patient Reported Outcomes Measures (PROMs) are feasible and valuable for stroke patients during post-discharge follow-up. Discussing PROM results enhances patient insight and healthcare provider understanding.
Area of Science:
- Neurology
- Health Services Research
- Patient Outcomes
Background:
- Patient Reported Outcomes Measures (PROMs) are increasingly used in stroke care.
- Implementation of PROMs in routine stroke care is still developing.
- This study explores patient experiences with PROMs in ischemic stroke follow-up.
Purpose of the Study:
- To evaluate the patient experience with Patient Reported Outcomes Measures (PROMs) in routine post-discharge stroke care.
- To assess the perceived value of PROMs during consultations for ischemic stroke patients.
- To understand how PROMs impact patient insight and healthcare provider understanding.
Main Methods:
- Prospective mixed methods study involving ischemic stroke patients.
- Patients completed evaluation questionnaires on PROMs and consultations.
- In-depth telephone interviews were conducted with a subset of patients.
Main Results:
- Most patients (82.2-96.6%) found PROMs feasible and relevant.
- Half of patients (49.2-51.6%) found PROMs useful for consultation; 87.3-96.8% reported positive consultation experiences.
- PROMs provided insight for 51.6% of patients and were seen as useful for healthcare providers by nearly 75%.
Conclusions:
- Completing PROMs is feasible for stroke patients post-discharge, offering significant added value.
- Discussing PROM results with patients is recommended to maximize their value and improve future completion rates.
- PROMs enhance patient self-insight and provide healthcare providers with a broader understanding of patient-related problems.
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