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The American Nurses Association (ANA) created and implemented the first nationally accepted Code of Ethics for Nurses with Interpretive Statements. The Code of Ethics is a living document regularly updated by the ANA and establishes an ethical standard that is non-negotiable for nurses in all roles and settings.
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An infrastructure for secure data sharing: a clinical data implementation.

Joanna F DeFranco1, Joshua Roberts2, David Ferraiolo2

  • 1Computer and Information Science, Penn State University, Malvern, PA 19355, United States.

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|May 16, 2024
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Summary

A new Secure Federated Data Sharing System (SFDS) enables controlled data sharing across organizations. This system uses Next-generation Database Access Control (NDAC) and Data Block Matrix (DBM) for efficient, policy-preserving data access in clinical research.

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access controldata sharingdistributed ledgersprivacysecurity

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Area of Science:

  • Data Science
  • Computer Science
  • Bioinformatics

Background:

  • Database interoperability presents significant challenges for collaboration among disparate organizations.
  • Existing data sharing methods often struggle to balance broad access with robust data protection policies.

Purpose of the Study:

  • To develop a lightweight system for secure and controlled data sharing across organizations.
  • To enhance collaboration in clinical research by addressing database interoperability issues.

Main Methods:

  • Developed the Secure Federated Data Sharing System (SFDS), a proof-of-concept system.
  • Utilized Next-generation Database Access Control (NDAC) for field-level access control based on user attributes.
  • Implemented the Data Block Matrix (DBM) using a modified open-source permissioned blockchain for managing user-attribute assignments across federated organizations.

Main Results:

  • Successfully demonstrated onboarding of new users with policy-preserving access to local database resources.
  • Validated the system's ability to manage and share authoritative user-attribute assignments.
  • SFDS components (NDAC and DBM) exhibited excellent performance metrics.

Conclusions:

  • The SFDS offers a generic, transparent, and secure data-sharing infrastructure.
  • The system requires no modifications to existing database management systems or authentication methods.
  • Its efficiency, deployment flexibility, and granular control make it practical for the clinical research community's data-sharing needs.