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Patient Information Needs and Decision-Making Before a Cardiac Implantable Electronic Device: A Qualitative Study
Mitchell Nicmanis1, Joshua Holmes2, Melissa Oxlad3
1School of Psychology, Faculty of Health and Medical Sciences, The University of Adelaide, Level 5, Hughes Building North Terrace Campus, Adelaide, SA, 5000, Australia. mitchell.nicmanis@adelaide.edu.au.
Journal of Clinical Psychology in Medical Settings
|May 21, 2024
Summary
Patients considering cardiac implantable electronic devices (CIEDs) seek personal experiences online. Understanding these informational and emotional needs is crucial for healthcare providers to support patient decision-making.
Area of Science:
- Biomedical Engineering
- Health Informatics
- Patient Experience Research
Background:
- The decision to undergo cardiac implantable electronic device (CIED) implantation is complex.
- Existing research primarily relies on retrospective patient accounts.
- There is a need to understand prospective patients' information-seeking behaviors.
Purpose of the Study:
- To characterize information needs of individuals considering CIEDs using social media data.
- To identify factors influencing the decision-making process for CIED implantation.
- To explore the role of online communities in patient support.
Main Methods:
- A Python script collected Reddit posts related to CIEDs.
- Reflexive content analysis was applied to analyze user-generated data.
- 101 posts from 86 participants were analyzed.
Main Results:
- Participants primarily sought experiential information and shared personal concerns.
- Key themes included "Use of social media for needs", "Factors influencing acceptance", and "Decision-making concerns".
- Asymptomatic individuals expressed significant doubts, highlighting acceptance as a key factor.
Conclusions:
- Prospective CIED patients actively use social media to gather experiential information.
- Healthcare professionals must address the informational and emotional needs of these patients.
- Tailored support is essential to facilitate informed decision-making for CIED implantation.
