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Related Concept Videos

Autism Spectrum Disorder01:19

Autism Spectrum Disorder

83
Autism spectrum disorder (ASD) is a neurodevelopmental condition marked by persistent deficits in social communication and interaction alongside restrictive and repetitive behaviors or interests. ASD is sometimes accompanied by intellectual impairment.
These core symptoms manifest differently among individuals, ranging from mild to severe. The disorder's complexity extends beyond its clinical presentation, encompassing a diverse range of biological, cognitive, and sociocultural influences.
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Modeling in Therapy01:26

Modeling in Therapy

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Modeling, a key technique in therapy, uses observational learning to help clients acquire and practice new skills by watching therapists demonstrate desired behaviors. This approach, rooted in Albert Bandura's concept of vicarious learning, plays a significant role in therapeutic interventions for various psychological conditions, including social anxiety, ADHD, and depression.
Participant Modeling
Participant modeling involves therapists demonstrating calm and effective behaviors in...
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Related Experiment Video

Updated: Jun 25, 2025

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Enhancing multi-site autism research through the development of a collaborative data platform.

Jeffrey T Anderson1, Jeffrey D Roth1, Kashia A Rosenau1

  • 1Department of Medicine, University of California, Los Angeles, California, USA.

Autism Research : Official Journal of the International Society for Autism Research
|May 25, 2024
PubMed
Summary
This summary is machine-generated.

The Autism Intervention Research Network on Physical Health (AIR-P) developed the Infrastructure for Collaborative Research (ICR) to standardize autism data collection. This framework promotes equitable research, enhances data sharing, and centers autistic voices for better outcomes.

Keywords:
ICRautismcollaborationdatapublic healthrepository

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Area of Science:

  • Neuroscience
  • Public Health
  • Data Science

Background:

  • Data repositories require robust standards for collecting and using data, especially from vulnerable populations.
  • The Autism Intervention Research Network on Physical Health (AIR-P) identified a need for standardized practices in autism research data management.
  • Existing autism research data practices lacked sufficient standardization, inter-site collaboration, and participant engagement.

Purpose of the Study:

  • To establish standardized data collection practices for autism research repositories.
  • To foster inter-site collaboration and amplify autistic voices in research.
  • To increase the accessibility and transparency of autism research data.

Main Methods:

  • Development of the Infrastructure for Collaborative Research (ICR) as a three-tiered framework.
  • Implementation of a request for proposals system, a REDCap-based data repository, and public data dashboards.
  • Inclusion of a review process with autistic and non-autistic researchers and an opt-in contact registry for participants.

Main Results:

  • The ICR framework aims to standardize autism research data collection and enhance inter-study consistency.
  • Public data dashboards will display aggregate, de-identified data, promoting transparency.
  • An opt-in contact registry will facilitate participant recruitment and engagement.

Conclusions:

  • The ICR framework promotes equitable autism research by standardizing data collection and increasing transparency.
  • Enhanced collaboration and data accessibility are key outcomes of the ICR.
  • The ICR infrastructure supports research that benefits autistic individuals by prioritizing their voices and needs.