Perceptions and Utilization of Online Peer Support Among Informal Dementia Caregivers: Survey Study

Area of Science:

• Gerontology
• Health Informatics
• Sociology

Background:

• Informal dementia caregivers face significant mental, physical, and financial burdens.
• Online communities offer a platform for caregivers to share strategies and experiences.
• Existing research on online peer support is limited, focusing mainly on current users.

Purpose of the Study:

• To investigate informal dementia caregivers' perceptions and utilization of online peer support.
• To identify factors influencing access to online peer support among this population.

Main Methods:

• A survey was designed using the Andersen and Newman Framework of Health Services Utilization.
• Data were collected on predisposing, enabling, and need factors influencing online peer support access.
• The survey was distributed via the Alzheimer's Association website and ALZConnected, with regression analysis performed on responses.

Main Results:

• 140 informal dementia caregivers completed the survey; 81.4% were female and 90% were White.
• Accessing online communities was significantly associated with a belief in the value of peer support (P=.006).
• Key barriers to access included lack of time (10%) and insufficient online information-searching skills (6.4%).

Conclusions:

• Online peer support is perceived as valuable by informal dementia caregivers.
• Practical strategies are needed to overcome barriers such as time constraints and limited digital literacy.
• Further research should focus on developing interventions to enhance access for caregivers facing these challenges.