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Developing Ethics and Equity Principles, Terms, and Engagement Tools to Advance Health Equity and Researcher
Rachele Hendricks-Sturrup1, Malaika Simmons1, Shilo Anders2
1National Alliance Against Disparities in Patient Health, Woodbridge, VA, United States.
The AIM-AHEAD Ethics and Equity Workgroup developed principles and a glossary to guide ethical AI and ML in health equity research. This initiative aims to foster diversity and fairness in AI development for underserved communities.
Area of Science:
- Biomedical research
- Health equity
- Artificial intelligence and machine learning
Background:
- Rapid advancement in AI/ML technology design and development.
- Identified limitations in addressing complex sociohumanitarian issues.
- Imperative to enhance AI/ML literacy in underserved communities and diversify the workforce in health research.
Purpose of the Study:
- Leverage AI/ML to assess health and disease factors and improve medical outcomes.
- Describe activities of the AIM-AHEAD Ethics and Equity Workgroup (EEWG).
- Develop deliverables to prioritize ethics and fairness in AI/ML for health equity.
Main Methods:
- Established the AIM-AHEAD EEWG in 2021 with diverse membership.
- Utilized a modified Delphi approach with polling and ranking exercises.
- Facilitated discussions on tangible steps, terms, and definitions for ethical AI/ML in health equity.
Main Results:
- Developed a set of 5 core ethics and equity principles with subparts.
- Created a glossary of 12 terms and definitions for AI/ML in health equity research.
- Produced an interview guide for stakeholder perspectives and a concept relationship diagram.
Conclusions:
- Emphasize the need for ongoing engagement with principles and glossary.
- Address potential limitations, especially for institutions with limited resources.
- Advocate for a deliberate approach to foster diversity, ethics, and equity in AI/ML for health research.
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