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Testing Sensory and Multisensory Function in Children with Autism Spectrum Disorder
Published on: April 22, 2015
Short report: Integrated evaluations for autism spectrum disorder in pediatric primary care clinics
Serene Habayeb1, Anne Inge1, Erica Eisenman1
1Children's National Hospital, USA.
Insights
A new program trained mental health clinicians in primary care to conduct autism diagnostic evaluations, significantly reducing wait times for underserved families. This approach improves early diagnosis and access to services, addressing healthcare inequities.
Area of Science:
- Neurodevelopmental Disorders
- Health Services Research
- Health Equity
Background:
- Autism screening is common in primary care, but diagnosis is often delayed for years.
- Systemic inequalities, including racism and socioeconomic status, exacerbate delays in autism diagnosis and service access.
- Primary care mental health clinicians can bridge gaps in diagnostic evaluation but often lack autism-specific training.
Purpose of the Study:
- To evaluate a training program for mental health professionals in urban primary care.
- To assess the program's effectiveness in providing autism diagnostic evaluations for underserved populations.
- To determine if primary care-based evaluations reduce diagnostic delays and improve access to services.
Main Methods:
- The Autism in Primary Care (APC) program trained mental health clinicians in an urban primary care setting.
- Evaluations were conducted within the primary care setting, serving primarily Black and Latinx families with Medicaid insurance.
- Wait times for APC evaluations were compared to standard referral pathways.
Main Results:
- Two hundred fifty children completed diagnostic evaluations through the APC program.
- The APC program demonstrated significantly shorter wait times compared to traditional autism clinics.
- Referring providers and caregivers reported high satisfaction with the primary care-based evaluation services.
Conclusions:
- Integrating autism diagnostic evaluations into primary care settings is a promising strategy.
- This model can improve early diagnosis and access to services, particularly for marginalized communities.
- Primary care-based evaluations have the potential to reduce healthcare inequities and enhance child and caregiver well-being.
Lay Abstract:
Primary care providers often screen for autism during well child visits in the first few years of life and refer children for diagnostic evaluations when needed. However, most children do not receive a diagnosis until years later which delays access to services. Racism, socioeconomic status, and other systemic inequalities that limit access to health care further delay diagnostic evaluations. Mental health clinicians who work in primary care clinics can help address barriers to accessing diagnostic evaluation services once they are recommended by their primary care provider. However, mental health clinicians who work in primary care typically do not have training in diagnosing autism. The goal of this study was to evaluate a program training mental health professionals working in an urban primary care setting, primarily serving Black and Latinx families insured by Medicaid, to provide autism diagnostic evaluations. Two hundred and fifty children completed evaluations through the Autism in Primary Care (APC) program. The wait time to access an evaluation through APC was significantly shorter than through standard avenues of care (e.g. referring to a separate autism clinic). Referring primary care providers and caregivers endorsed high levels of satisfaction with the program. Conducting autism evaluations in primary care settings offers a promising opportunity to improve earlier diagnosis and treatment access for families, reduce inequities in care, and increase caregiver and child well-being.
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