Childhood outcomes following discharge from a referral bronchopulmonary dysplasia program

Katharine P Callahan1,2,3, Kathryn Farrell4, Kathleen Gibbs5,4

  • 1Division of Neonatology, Children's Hospital of Philadelphia, Philadelphia, PA, USA. callahankp@chop.edu.

Insights

Children with severe bronchopulmonary dysplasia (BPD) face significant health and developmental challenges. These morbidities impact quality of life, with developmental issues becoming more prominent over time.

Area of Science:

  • Pediatric Pulmonology
  • Neonatology
  • Child Development

Background:

  • Bronchopulmonary dysplasia (BPD) is a chronic lung disease in infants.
  • Severe BPD requires specialized quaternary care.
  • Long-term outcomes for severe BPD are not fully understood.

Purpose of the Study:

  • To profile health, development, and quality of life in children with severe BPD.
  • To assess outcomes for children discharged from a quaternary BPD referral program.
  • To identify correlations between morbidities and quality of life.

Main Methods:

  • Cross-sectional study design.
  • Telephone interviews with 282 families.
  • Children aged 18 months to 11 years with severe BPD.

Main Results:

  • Respiratory morbidities were prevalent; 42% required tracheostomy.
  • Developmental morbidities were significant, with 97% needing individualized educational plans.
  • Health and quality of life correlated with respiratory morbidity severity; developmental issues worsened over time.

Conclusions:

  • Children referred to quaternary BPD programs experience severe respiratory and developmental morbidities.
  • Outcomes suggest a greater burden of disease than previously reported.
  • Developmental morbidities increasingly impact quality of life in this population.
Abstract

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