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Updated: Jun 22, 2025

Assessment and Evaluation of the High Risk Neonate: The NICU Network Neurobehavioral Scale
19:15

Assessment and Evaluation of the High Risk Neonate: The NICU Network Neurobehavioral Scale

Published on: August 25, 2014

85.9K

Parental impact during and after neonatal intensive care admission

Danielle Guez-Barber1, Betsy Pilon2

  • 1Instructor, Division of Neurology, Department of Pediatrics, The Children's Hospital of Philadelphia (CHOP), Philadelphia, PA 19104, USA; University of Pennsylvania Perelman School of Medicine, Philadelphia, PA 19104, USA.

Seminars in Perinatology
|July 4, 2024
PubMed

Insights

Parents are vital partners in improving infant neurodevelopmental outcomes in the neonatal intensive care unit (NICU). Integrating parents into clinical care and research leads to better outcomes for children.

Area of Science:

  • Neonatal care
  • Neurodevelopmental research
  • Pediatric clinical practice

Background:

  • Parents significantly influence neurodevelopmental outcomes for infants in the neonatal intensive care unit (NICU).
  • Parental engagement in clinical care and research offers synergistic benefits, enhancing both care comprehensiveness and research robustness.

Purpose of the Study:

  • To review strategies for integrating parents into neonatal intensive care unit (NICU) clinical care and research.
  • To highlight the importance of effective communication and collaborative partnerships.

Main Methods:

  • Review of existing literature and strategies for parental integration.
  • Discussion of parental involvement in therapeutic interventions and neurodevelopmental care.
  • Analysis of communication strategies for clinicians and researchers.

Main Results:

  • Engaged parents contribute to more comprehensive clinical care and meaningful research.
  • Successful integration of parents improves clinical and research outcomes for children.
  • Challenges in neonatal trials necessitate a culture of research and strong partnerships.

Conclusions:

  • Recognizing and fostering the role of parents as active teammates is crucial.
  • Optimizing neurodevelopmental outcomes in the NICU and beyond requires collaborative efforts between parents, clinicians, and researchers.
  • Ongoing support and partnerships with advocacy organizations are essential for sustained success.

Keywords:
Family-centered careFamily-integrated careNICUNeonatal clinical trialsNeurodevelopmental outcomesParentsPatient advocacy

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