GRAPPA 2023 Patient Research Partner (PRP) Network Update: Enhancing PRP Involvement Within GRAPPA

Area of Science:

• Rheumatology
• Patient-Centered Research
• Dermatology

Background:

• The Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA) emphasizes collaboration between researchers, clinicians, and patients.
• Patient research partners (PRPs) are integral to advancing psoriatic disease research.

Purpose of the Study:

• To summarize the activities and engagement of the GRAPPA PRP Network at the GRAPPA 2023 annual meeting.
• To highlight the ongoing commitment to enhancing patient involvement in GRAPPA.

Main Methods:

• Nine PRPs attended the GRAPPA 2023 annual meeting in person.
• Discussions were held regarding PRP engagement with the GRAPPA leadership team.
• PRPs presented at the plenary session and actively participated in breakout sessions and workshops.

Main Results:

• PRP engagement at the GRAPPA 2023 meeting was significantly active, exceeding previous years.
• The importance of close researcher-clinician-PRP relationships was reinforced.
• PRPs contributed unique perspectives from lived experience.

Conclusions:

• The GRAPPA PRP Network is dedicated to supporting the GRAPPA mission.
• Enhanced PRP involvement is crucial for advancing psoriatic disease research and patient care.
• Continued active participation of PRPs strengthens the collaborative research environment.