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A Clinician's Guide To Effectively Transitioning and Transferring Care For Pediatric Patients With Inflammatory Bowel
Jessica N Barry1, Jonathan D Moses2, Sandra C Kim3
1Cleveland Clinic, Division of Pediatric Gastroenterology, Hepatology and Nutrition, Cleveland, OH, USA.
Insights
Transitioning pediatric patients with inflammatory bowel diseases (IBD) to adult care requires structured programs and patient-provider partnerships. This ensures better clinical and psychosocial outcomes for young adults managing IBD.
Area of Science:
- Gastroenterology
- Pediatric Care
- Transition Medicine
Background:
- Transition of care for pediatric patients with inflammatory bowel diseases (IBD) is a complex, multi-year process.
- Effective transitioning requires a coordinated, multidisciplinary team approach.
- Adolescent and young adult patients with IBD face unique challenges in managing their health.
Purpose of the Study:
- To review concepts, tools, and research in effective transitioning and transfer of care for adolescent/young adult patients with IBD.
- To identify barriers and facilitators for successful care transition in IBD.
Main Methods:
- Review of current literature and clinical practice guidelines on IBD care transition.
- Analysis of factors influencing successful transition from pediatric to adult gastroenterology care.
Main Results:
- Healthcare system constraints pose challenges to implementing effective transitioning.
- Barriers include limited resources, expertise, and non-gastrointestinal issues impacting young adults.
- Facilitators include structured programs, validated checklists, and IBD medical summaries.
- Proactive transitioning by pediatric gastroenterologists improves clinical and psychosocial outcomes.
Conclusions:
- Structured transitioning programs, checklists, and medical summaries facilitate successful transfer of IBD care.
- Partnership between pediatric and adult gastroenterology teams, along with patients, is crucial.
- Comprehensive transition tools and medical summaries prepare young adults for independent care and health maintenance.
Purpose Of Review:
Transition of care for pediatric patients with inflammatory bowel diseases (IBD) is a continuous, dynamic process that takes place over several years with a coordinated approach executed by a multidisciplinary team. We review the concepts, tools, and research in effective transitioning and transfer of care for adolescent/young adult patients with IBD.
Recent Findings:
Given the constraints within the healthcare system, effective transitioning can be challenging to implement in everyday clinical practice. Different barriers include resources and expertise in effective transitioning by pediatric and adult gastroenterology healthcare providers and the impact of non-gastrointestinal issues facing young adult patients who are learning to manage and coordinate all aspects of their medical care and health maintenance. Factors that facilitate successful care transitioning and transfer include structured transitioning programs, utilization of validated transition checklists, and IBD medical summaries. Proactive transitioning by pediatric gastroenterologists in partnership with their emerging young adult patients with IBD leads to better clinical and psychosocial outcomes and ultimately, effective transfer of care to adult gastroenterology. By utilizing utilize comprehensive transition assessment tools and medical summaries in partnership with their patients, pediatric and adult gastroenterology teams can better prepare patients as they transfer to independent care and health maintenance.
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