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Harnessing Mobility: A Medically Complex Child's Home Program Utilizing an In-Home Body Weight Support System
Andrina Sabet1, James Cole Galloway
1Go Baby Go, Mobility Matters, LLC, Cleveland, Ohio (Ms Sabet); Go Baby Go, University of Delaware, Newark, Delaware Physical Therapy, Baylor University, Waco, Texas (Dr Galloway).
Summary
A home program using over-ground body weight support (BWS) effectively enhanced mobility and play for a child with medical complexity. High adherence and positive engagement demonstrated BWS feasibility for functional improvement at home.
Area of Science:
- Pediatric Rehabilitation
- Assistive Technology
- Childhood Medical Conditions
Background:
- Children with medical complexity face challenges attending regular therapy sessions.
- Home-based therapy programs are crucial for consistent care and progress.
- Over-ground body weight support (BWS) systems offer potential for enhanced mobility in complex cases.
Purpose of the Study:
- To outline and evaluate a home program utilizing an over-ground body weight support (BWS) system for a child with medical complexity.
- To assess the feasibility and engagement of a home-based BWS program.
Main Methods:
- A child-centered home program was designed, prioritizing family leadership and best practices.
- The PUMA (portable mobility aid for children), an over-ground BWS system, was implemented for daily use.
- Usage was monitored for duration, frequency, and perceived enjoyment.
Main Results:
- The child and family showed high adherence, using the BWS system 87% of the time it was available.
- Average daily usage was 59 minutes, spread across multiple sessions.
- The average daily 'fun index' reported was 7 out of 10, indicating positive engagement.
Conclusions:
- Over-ground BWS technology provides a feasible and enjoyable platform for improving functional mobility in children with significant medical and physical limitations.
- Home-based BWS programs can successfully support active play and socialization.
- This approach highlights the potential of assistive technology for enhancing quality of life in medically complex children.
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