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Making it Work: Everyday Life and Healthcare with Multiple Chronic Illnesses in Denmark
Anna Louise Skovgaard1,2,3, Tine Tjørnhøj-Thomsen4, Marianne Johansson Jørgensen1
1Department of Research, Horsens Regional Hospital, Horsens, Denmark.
Living with multiple chronic conditions involves a significant treatment burden. Understanding patient experiences and healthcare interactions is crucial for improving care for those with multimorbidity.
Area of Science:
- Healthcare studies
- Medical sociology
- Patient-centered care
Background:
- Growing concern regarding the "treatment burden" associated with multimorbidity.
- Need for better understanding of healthcare's impact on patients with multiple conditions.
Purpose of the Study:
- To explore how individuals with multimorbidity navigate their illness trajectories.
- To investigate the role of "values" in healthcare encounters for patients with multiple conditions.
- To analyze the creation of subject positions within healthcare relationships.
Main Methods:
- Ethnographic fieldwork among individuals with multimorbidity in Denmark.
- Drawing on recent theorization of "values" in healthcare.
- Analysis of "trying out" and "just getting on with it" in illness management.
Main Results:
- Illness trajectories in multimorbidity are characterized by ongoing "trying out" and "just getting on with it."
- Healthcare relations and encounters shape the subject positions available to patients.
- Patient experiences highlight the practical and value-laden aspects of managing multiple conditions.
Conclusions:
- Healthcare practices should acknowledge and support the "trying out" and adaptive strategies of patients with multimorbidity.
- Understanding patient values is essential for effective healthcare encounters.
- Recognizing how healthcare shapes patient subject positions can lead to more patient-centered approaches.
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