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Moral Distress and Pediatric Palliative Care
Sunny Jeong1, Angela Knackstedt1,2, Jennifer S Linebarger3
1Bioethics Center, Children's Mercy-Kansas City, Kansas City, MO 64108, USA.
Children (Basel, Switzerland)
|July 27, 2024
Summary
Pediatric palliative care teams can help reduce moral distress in healthcare professionals by improving communication and ethical guidance. Their involvement supports clinicians, patients, and families in challenging pediatric healthcare situations.
Area of Science:
- Pediatric Healthcare
- Medical Ethics
- Palliative Care
Background:
- Moral distress arises from conflicts between personal values and actions in healthcare.
- Pediatric settings present unique challenges due to complex patient-family-clinician dynamics.
- Healthcare professionals experience moral distress, impacting well-being and care delivery.
Purpose of the Study:
- To explore the role of pediatric palliative care (PPC) in mitigating moral distress among healthcare professionals.
- To examine how PPC teams can support clinicians, patients, and families in challenging ethical situations.
- To highlight the benefits of integrating PPC for managing moral distress in pediatric care.
Main Methods:
- Qualitative analysis of experiences within a quaternary pediatric hospital.
- Observational insights into the integration of PPC teams.
- Case study approach focusing on challenging ethical scenarios.
Main Results:
- PPC team involvement reframes challenging situations and enhances communication.
- PPC provides guidance to care teams, patients, and families.
- PPC teams educate multidisciplinary members on respecting diverse values and ethical considerations.
Conclusions:
- Proactive integration of PPC teams is effective in reducing moral distress in pediatric healthcare.
- PPC enhances ethical decision-making and supports diverse patient and family values.
- PPC teams are valuable resources for managing moral distress and improving care quality.
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