Transition mentorship for spina bifida patients with the JUMP program: a pilot study

Area of Science:

• Medical transition care
• Adolescent health
• Spina Bifida (SB) management

Background:

• Transitioning from pediatric to adult healthcare presents significant challenges for spina bifida (SB) patients and families.
• Existing adult care settings are often less equipped to handle the specific needs of SB patients.
• Adolescence and young adulthood involve unique psychological stressors that can be exacerbated by chronic medical conditions.

Purpose of the Study:

• To analyze the initial outcomes of a trial mentorship program designed to support SB patients during their transition to adult care.
• To evaluate the effectiveness of a structured mentorship program in preparing adolescents with SB for lifelong healthcare management.
• To identify successes and challenges in implementing a mentorship initiative for young adults with spina bifida.

Main Methods:

• Development of the Join, Unite, Motivate, and Prepare (JUMP) program, a mentorship initiative pairing teen SB patients with undergraduate/medical students.
• Establishment of individualized transition plans with clinical, self, and parent/guardian goals for each mentee.
• Regular progress monitoring by the SB program director through meetings with mentors to discuss goal achievement and areas for development.

Main Results:

• Thirteen mentor-mentee pairs were formed over a 9-month period, with 6 pairs maintaining regular communication.
• Mentees experienced successes such as obtaining employment, applying for scholarships, and starting college.
• Program challenges included inconsistent follow-up, risks associated with virtual platforms, and geographical barriers between mentors and mentees.

Conclusions:

• The transition from pediatric to adult care for adolescents with spina bifida remains a significant challenge.
• Interactive programs can potentially enhance readiness, patient autonomy, and integration into adult healthcare.
• The mentorship model, as implemented in this spina bifida program, did not conclusively demonstrate success as a remedy for transition difficulties.