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Potential, Pitfalls, and Future Directions for Remote Monitoring of Chronic Respiratory Diseases: Multicenter Mixed
Martinus C Oppelaar1, Yvette Emond2, Michiel A G E Bannier3
1Department of Pediatric Pulmonology, Amalia Children's Hospital, Radboud University Medical Center, Nijmegen, Netherlands.
Journal of Medical Internet Research
|August 6, 2024
Summary
Remote monitoring in cystic fibrosis (CF) care is viewed positively by patients and healthcare professionals, offering benefits like reduced healthcare consumption. Future integration into hybrid models is desired, balancing patient needs with monitoring burdens.
Area of Science:
- Digital Health
- Respiratory Medicine
- Health Services Research
Background:
- Limited literature exists on integrating remote monitoring into chronic respiratory disease (CRD) care models.
- Existing research does not adequately define the scope and best practices for remote monitoring in CRDs.
Purpose of the Study:
- To examine a remote monitoring program (RMP) in cystic fibrosis (CF) over three years.
- To explore patient and healthcare professional experiences, future perspectives, and usage patterns of RMP.
- To develop future directions for remote monitoring in CRD care.
Main Methods:
- Mixed-methods, multicenter, observational study in 5 Dutch CF centers.
- Utilized questionnaires based on the technology acceptance model and semistructured interviews.
- Analyzed anonymous data on RMP usage frequency.
Main Results:
- High acceptance of RMP by both people with CF (89%) and healthcare professionals (65% response rate).
- Positive experiences reported, with home spirometry being the most valued tool.
- Concerns included potential patient disengagement and psychosocial stress (17% of patients).
Conclusions:
- Remote monitoring shows significant potential within CF care models.
- Four practice-based future directions for RMP in CF and CRD care were identified.
- Strategies aim to guide integration of digital health, aligning remote care with patient and clinician needs.
Keywords:
chronic respiratory diseasesclinicianscystic fibrosisdigital healthevaluationhealth care professionalsinterviewsmixed methodmixed methodsobservational studypediatricspolicy makerspsychosocialqualitative studyremote monitoringresearcherssemistructured interviewtelehealthtelemonitoringtelespirometry
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