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Facing further challenges in cancer data quality and harmonisation.

Francesco Giusti^1,2, Carmen Martos^1,3, Raquel N Carvalho¹

¹European Commission, Directorate General Joint Research Centre, Ispra, VA, Italy.

Frontiers in Oncology

|August 9, 2024

Summary

European cancer registries are improving data quality and harmonization through collaboration. This research topic shares experiences to address future challenges in cancer epidemiology.

Keywords:

Europe cancer registry challenges data harmonisation data quality

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Area of Science:

Oncology
Epidemiology
Public Health

Background:

European population-based cancer registries (PBCRs) are crucial for cancer surveillance.
Data quality and harmonization are essential for accurate epidemiological studies.
Collaboration between the European Network of Cancer Registries (ENCR) and the Directorate-General Joint Research Centre (JRC) is ongoing.

Purpose of the Study:

To highlight recent activities in data quality and harmonization among European PBCRs.
To summarize experiences shared in the Frontiers in Oncology Research Topic.
To provide insights for future challenges and opportunities in cancer epidemiology.

Main Methods:

Review of activities within the ENCR-JRC collaboration.
Synthesis of research findings presented in a dedicated Research Topic.
Discussion of specific examples of data quality and harmonization efforts.

Main Results:

Ongoing efforts in improving data quality and harmonization across European PBCRs.
Successful collaboration between ENCR and JRC.
Valuable experiences shared by European researchers.

Conclusions:

The shared experiences are beneficial for PBCRs facing future epidemiological challenges.
Continued focus on data quality and harmonization is vital for cancer research.
The collaborative framework supports advancements in European cancer epidemiology.