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Comprehensive Autopsy Program for Individuals with Multiple Sclerosis
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Shared decision-making in underserved populations with multiple sclerosis: A systematic review.

Aliza Bitton Ben-Zacharia1, Jen Smrtka2, J Tamar Kalina2

  • 1Hunter Bellevue School of Nursing and Mount Sinai Hospital; Hunter Bellevue School of Nursing, 425 E 25th St, New York, NY 10010, USA; Mount Sinai, 146 East 126 Street, New York, NY 10035, USA.

Multiple Sclerosis and Related Disorders
|August 9, 2024
PubMed
Summary

Shared decision-making (SDM) benefits patients with multiple sclerosis (MS), but underserved populations face barriers. Addressing social determinants of health is crucial for equitable SDM implementation.

Keywords:
Multiple sclerosisShared decision-makingUnderserved population

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Area of Science:

  • Health Services Research
  • Patient-Centered Care
  • Health Disparities

Background:

  • Shared decision-making (SDM) is vital for personalized patient care and improved long-term outcomes.
  • Underserved populations may experience reduced engagement in SDM, potentially affecting their ongoing healthcare.
  • This review investigates SDM within these specific patient groups.

Purpose of the Study:

  • To systematically review the literature on shared decision-making (SDM) in underserved patient populations.
  • To identify challenges and benefits of SDM for diverse patient groups.

Main Methods:

  • A systematic literature search was conducted on PubMed.
  • Articles were screened by two independent reviewers.
  • Thematic analysis was employed for data synthesis.

Main Results:

  • Of 418 retrieved articles, 89 were included; 33 focused on multiple sclerosis (MS) patients.
  • 52% of MS patients (including underserved) preferred SDM.
  • Lower health literacy and cultural beliefs in underserved groups impact information assimilation; primary care clinicians are key information providers.

Conclusions:

  • SDM offers significant benefits for MS patients, with its absence leading to dissatisfaction and distrust.
  • Challenges remain in addressing social determinants of health for equitable SDM in underserved populations.
  • Further research is needed to overcome these barriers.