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Multidisciplinary Perspectives on Medical Decision-Making for Ostomy Surgery in Pediatric IBD: Themes from Focus
Jennie G David1,2, Jennifer L Dotson3,4,5,6, Laura Mackner3,4,7
1Nationwide Children's Hospital, 700 Children's Drive, Columbus, OH, 43205, USA. jennie.david@nationwidechildrens.org.
Journal of Clinical Psychology in Medical Settings
|August 14, 2024
Summary
Pediatric Inflammatory Bowel Disease (IBD) ostomy surgery involves complex decisions. Understanding healthcare professionals
Area of Science:
- Pediatric Gastroenterology
- Surgical Decision-Making
- Healthcare Professional Education
Background:
- Pediatric Inflammatory Bowel Disease (IBD) often necessitates ostomy surgery, presenting complex medical decision-making (MDM) challenges.
- Uncertainty exists regarding how multidisciplinary healthcare professionals (HCPs) approach ostomy care, impacting equitable patient management.
Purpose of the Study:
- To explore pediatric IBD multidisciplinary HCPs' perceptions of ostomy-related MDM and education.
- To identify factors influencing ostomy surgery decision-making in pediatric IBD.
Main Methods:
- Semi-structured focus groups were conducted with multidisciplinary HCPs involved in pediatric IBD care.
- Qualitative analysis was used to identify key themes from the focus group discussions.
Main Results:
- Three primary themes emerged: HCP perceptions of ostomies, patient/family factors, and professional roles/collaboration challenges.
- HCP perspectives revealed patient, provider, and system-level factors influencing ostomy MDM.
Conclusions:
- Ostomy surgery in pediatric IBD demands complex, multidisciplinary MDM and education.
- Addressing nuances in MDM and education requires further research and standardized processes for coordinated care.
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