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Daily life without cranial bone protection while awaiting cranioplasty: a qualitative study
Henrietta Gustavsson1,2, Eva Jangland3, Lena Nyholm4
1Department of Medical Sciences, Neurosurgery, Uppsala University, Uppsala, Sweden. henrietta.gustavsson@akademiska.se.
Acta Neurochirurgica
|August 19, 2024
Summary
Patients undergoing decompressive craniectomy (DC) face daily challenges without cranial bone protection while awaiting cranioplasty (CP). Care requires a person-centered approach to manage this vulnerable period.
Area of Science:
- Neurosurgery
- Patient Experience
- Quality of Life
Background:
- Decompressive craniectomy (DC) is a critical neurosurgical procedure for severe brain injury.
- Cranioplasty (CP) follows DC to restore skull integrity.
- Limited understanding exists regarding daily life for patients post-DC awaiting CP.
Purpose of the Study:
- To explore the daily life experiences of patients without cranial bone protection after DC, during the interval before CP.
- To identify challenges and coping mechanisms in this patient group.
Main Methods:
- A multiple-case study design was employed.
- Interviews were conducted with six patients, their families, and healthcare staff.
- Qualitative content analysis was used to analyze the interview data.
Main Results:
- Five key themes emerged: adapting to new routines, constant awareness of lacking cranial protection, need for qualified staff, impact of recovery degree, and life in limbo awaiting CP.
- Patients developed new habits but faced limitations and inconveniences.
- The waiting period for CP was perceived as frustrating and uncertain.
Conclusions:
- Patients without cranial bone protection are a vulnerable group requiring tailored support.
- A person-centered care approach is essential to enhance safety and reduce daily life problems.
- Individualized scheduling for CP and clear contact information for healthcare institutions are recommended.
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