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Towards a Learning Health System for Symptom Management in Hospice Care
Marieke Massa1, Marijke A Dermois1, Jennifer Caffarel1
1Department of Research and Development, Netherlands Comprehensive Cancer Organisation, Utrecht, The Netherlands.
Abstract:
The reuse of real-world symptom monitoring data is essential in improving the quality of hospice care. A framework for achieving this is a Learning Health System, in which the development of a well-defined dataset is essential. This paper discusses the challenges in the design of a comprehensive dataset, focusing on variations in two electronic health record systems and divergent care processes.
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