Synthesizing Clinical Data Warehouse Content for Enhanced External Collaboration: A Preliminary Proposal.

Area of Science:

• Biomedical Informatics
• Data Management
• Health Data Science

Background:

• Clinical Data Warehouses (CDWs) are valuable resources for research and development.
• External users face challenges accessing and understanding CDW contents.
• Limited data transparency hinders biomedical project initiation and completion.

Purpose of the Study:

• To propose a novel clinical data catalog to enhance CDW accessibility for external users.
• To facilitate the launch and completion of biomedical projects by clarifying CDW contents.
• To address key user questions: data availability, quantity, and generation methods.

Main Methods:

• Development of a conceptual framework for a clinical data catalog.
• Design of the catalog to answer specific user queries regarding CDW data.
• Implementation and visualization of a prototype catalog using Rennes University Hospital's CDW data.

Main Results:

• A prototype clinical data catalog was successfully developed and demonstrated.
• The catalog effectively elucidates CDW contents, addressing user inquiries.
• Visualization showcased the practical application of the catalog with real-world data.

Conclusions:

• The proposed clinical data catalog significantly enhances the accessibility and usability of CDWs.
• This approach supports external researchers and companies in leveraging clinical data.
• The catalog is a crucial tool for accelerating biomedical innovation and data-driven solutions.