Empowering Citizens Through Translated Patient Summary Access and Sharing in Digital Health Ecosystems

Area of Science:

• Digital Health
• Health Informatics
• Mobile Health Applications

Background:

• Fragmented healthcare systems create barriers to accessing and sharing patient data.
• Language differences in patient records complicate cross-border healthcare and data interpretation.
• Empowering individuals with control over personal health information is crucial for effective healthcare management.

Purpose of the Study:

• To introduce a mobile framework enhancing citizen access to and sharing of personal health data.
• To address challenges in healthcare data fragmentation and language barriers.
• To assess the usability and demand for a novel health data service.

Main Methods:

• Development of a mobile framework utilizing the EU eHealth Digital Service Infrastructure (eHDSI) OpenNCP.
• Implementation of the FHIR Smart Health Links Protocol for secure health data sharing.
• Conducting a pilot study with 40 participants to evaluate the framework's usability and effectiveness.

Main Results:

• The mobile framework successfully facilitated access and sharing of health data.
• The pilot study demonstrated the framework's usability and effectiveness.
• Participants showed a strong demand for accessible and controllable personal health services.

Conclusions:

• The developed mobile framework effectively enhances citizen control over personal health data.
• The integration of eHDSI OpenNCP and FHIR Smart Health Links Protocol addresses key healthcare data challenges.
• There is a significant citizen interest in innovative digital health solutions for managing personal health information.