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Development of a core descriptor set for parastomal hernia repair
Sue Blackwell1, Lisa Massey2, Akash Mehta3
1Patient representative, Liverpool, UK.
Summary
A new core descriptor set for parastomal hernia repair was developed to standardize patient reporting in research. This aims to improve the evidence base for this common surgical complication.
Area of Science:
- Surgical research methodology
- Hernia surgery outcomes
Background:
- Parastomal hernia repair lacks robust evidence and standardized patient reporting.
- Heterogeneity in patient cohorts complicates research and optimal management decisions.
Purpose of the Study:
- To develop a core set of essential patient descriptors for parastomal hernia repair research.
- To establish a standardized reporting framework for future studies in this area.
Main Methods:
- Literature review to generate an initial list of descriptors.
- Modified Delphi process involving patients and surgeons.
- International consensus meeting to ratify the final descriptor set.
Main Results:
- 19 core descriptors across eight domains were identified and ratified.
- Domains include anatomy, contamination, disease, previous treatment, risk factors, symptoms, pathway, and other hernia.
- The process involved 77 initial respondents, with 23 completing all three rounds.
Conclusions:
- The developed core descriptor set captures key characteristics important for reporting parastomal hernia repair.
- Standardized reporting using this set is expected to enhance future research and evidence in the field.
