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A web-based resource for exercise training in children treated for brain tumours to improve cognitive sequelae:
Elizabeth Cox1,2, Marium Kiwan1, Cynthia de Medeiros1
1Hospital for Sick Children, Toronto, Ontario, Canada.
Digital Health
|September 12, 2024
Summary
A new website provides exercise resources for health professionals to help children treated for brain tumors improve cognitive function in their communities. This resource aims to increase accessibility and improve quality of life for these children.
Area of Science:
- Neuroscience
- Rehabilitation Medicine
- Digital Health
Background:
- Cognitive impairments are common in children treated for brain tumors (CTBT).
- Current exercise interventions are primarily hospital-based and lack community accessibility.
- There is a need for accessible resources to support exercise interventions in community settings for CTBT.
Purpose of the Study:
- To develop a website with educational resources and tools for community health and fitness professionals (HFP).
- To enable HFPs to deliver exercise interventions for CTBT in community settings to improve cognition.
- To assess the usability of the developed website by community HFPs.
Main Methods:
- A scoping review identified eHealth resource gaps for exercise in CTBT.
- Focus groups with 13 HFPs informed website content based on user needs.
- Website usability was assessed by 4 community HFPs using a questionnaire and open-ended responses.
Main Results:
- The scoping review found a lack of eHealth resources and HFP education for exercise interventions in CTBT.
- HFPs rated the website as sufficiently learnable, clear, satisfactory, and efficient.
- Two minor usability issues were identified and addressed.
Conclusions:
- The website is a novel eHealth resource designed to enhance the accessibility of interventions for cognitive sequelae in CTBT survivors.
- It provides HFPs with essential education and tools to deliver exercise programs in community settings.
- This initiative aims to ultimately improve the quality of life for children treated for brain tumors.
