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Published on: February 16, 2011
Closing the value-based circle in shared decision-making: a digital framework for informing the shared
Marta Del Olmo Rodríguez1,2,3, Rafael Martos Martinez4,5, Adriana Pascual Martínez6,7
1Hospital Management, Quirónsalud 4H Network, Madrid, Spain.
Value-based healthcare uses patient-reported outcomes and experience measures (PROMs) to improve shared decision-making (SDM). A digital framework integrating PROMs data into patient decision aids shows promising results for enhancing patient involvement in treatment choices.
Area of Science:
- Healthcare delivery models
- Health informatics
- Patient engagement
Background:
- Value-based healthcare models increasingly utilize patient-reported outcomes and experience measures (PROMs/PREMs).
- PROMs/PREMs offer potential to integrate patient-reported data into clinical decision-making.
- This study focuses on the integration of PROMs/PREMs within shared decision-making (SDM).
Purpose of the Study:
- To explore the role of patient-reported outcomes (PROs) and shared decision-making (SDM) in value-based healthcare.
- To present a digital framework for enhancing SDM using aggregated PROMs/PREMs data.
- To report early implementation results of this digital framework.
Main Methods:
- A digital framework was developed to incorporate aggregated PROMs/PREMs data into a patient decision aid (PDA).
- The PDA was implemented for lymphoma patients, allowing them to review outcomes, prioritize preferences, and select actions.
- Patient-reported data was integrated into the electronic health record (EHR) and fed back into the PDA.
Main Results:
- During a 14-month period, 13 out of 25 follicular lymphoma patients participated in the digital decision aid program.
- No significant demographic differences were noted between participating and non-participating patients.
- The average Shared Decision-Making Questionnaire-9 (SDM Q-9) score for participating patients was 36.15 out of 45.
Conclusions:
- Implementation of shared decision-making (SDM) faces obstacles like time constraints and resistance to change.
- Policy maker and healthcare manager support is crucial for system-level adoption of patient-reported data and SDM.
- Early findings suggest a digital framework for PRO-enriched SDM can benefit the decision-making process.
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