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Neuropsychological performance labels: Do patients understand?

Racheal M Smetana¹, Emilie H Picard¹, Allison N Parker¹

¹Department of Psychiatry and Neurobehavioral Sciences, University of Virginia, Charlottesville, VA, USA.

The Clinical Neuropsychologist

|September 19, 2024

Summary

This summary is machine-generated.

Patient-centered language (PCL) improves understanding of neuropsychological performance labels compared to the American Academy of Clinical Neuropsychology (AACN) system. This study suggests PCL may enhance comprehension for patients and families.

Keywords:

Neuropsychological assessment patient-centered language qualitative descriptors test score labels

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Area of Science:

Neuropsychology
Medical Communication
Health Literacy

Background:

Standardized descriptive labels are crucial for communicating neuropsychological performance.
The American Academy of Clinical Neuropsychology (AACN) developed a uniform label system.
Understanding of these AACN labels by patients, families, and providers remains unclear.

Purpose of the Study:

To evaluate patient, family member, and medical provider comprehension of neuropsychological performance labels.
To compare understanding between the AACN uniform label system and a patient-centered language (PCL) system.

Main Methods:

A pilot prospective cohort study involving 62 patients, 31 family members, and 34 referral sources.
Participants completed a 13-question survey assessing knowledge of AACN and PCL label systems.
The survey evaluated label knowledge, associated percentiles, and relative relationships between labels.

Main Results:

Patients and families demonstrated significantly higher accuracy with PCL labels (54.8% and 51.6%) versus AACN labels (32.2% and 35.5%).
Providers and patients were more accurate in ranking labels using PCL compared to AACN.
Participants better identified absolute highest/lowest scores with AACN labels, but relative differences with PCL terminology.

Conclusions:

Current and alternative neuropsychological score labels may not be fully understood by report recipients.
Findings indicate a need to explore patient-centered language further to enhance the clarity of neuropsychological score communication.