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Quality indicators for care in juvenile idiopathic arthritis

Hend Alkwai1, Reem Alshammari2, Reem Abdwani3

  • 1Department of Pediatrics, College of Medicine, University of Ha'il, Ha'il, Saudi Arabia.

Journal of Rheumatic Diseases
|October 2, 2024
PubMed

Insights

A new set of 22 quality indicators (QIs) was developed to improve pediatric juvenile idiopathic arthritis (JIA) care in the Asia-Pacific region. These indicators focus on key domains to enhance patient outcomes.

Area of Science:

  • Pediatric Rheumatology
  • Healthcare Quality Improvement
  • Asia-Pacific Health

Background:

  • Juvenile idiopathic arthritis (JIA) is a chronic condition affecting children, requiring specialized care.
  • Improving the quality of care for JIA patients is crucial for optimal health outcomes.
  • The Asia-Pacific region presents unique challenges in delivering consistent pediatric rheumatology care.

Purpose of the Study:

  • To develop and validate a comprehensive set of quality indicators (QIs) for juvenile idiopathic arthritis (JIA) care.
  • To tailor these QIs for the specific needs of children in the Asia-Pacific region.
  • To establish a framework for evaluating and enhancing pediatric rheumatology services.

Main Methods:

  • Adaptation of the RAND/UCLA Appropriateness Method (RAM).
  • Systematic literature review to identify an initial 32 QIs.
  • Delphi panel consensus involving pediatric rheumatologists and stakeholders from the APLAR-Pediatric SIG.
  • Iterative voting rounds to refine and finalize QIs based on validity, reliability, and agreement.

Main Results:

  • A final set of 22 quality indicators (QIs) for JIA care was established.
  • The QIs are organized into six critical domains: access to care, clinical assessment, medication management, comorbidity screening, counseling, and patient satisfaction.
  • The consensus process ensured the relevance and applicability of the QIs across the Asia-Pacific region.

Conclusions:

  • The developed QIs provide a valuable tool for assessing and improving the quality of care for children with JIA.
  • Implementation of these QIs can lead to enhanced health outcomes and more patient-centered care.
  • These indicators support the goal of delivering specialized and effective healthcare for pediatric rheumatic diseases in the Asia-Pacific.
Abstract

Keywords:
Asia-Pacific regionJuvenile idiopathic arthritisOutcomeQuality indicators

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