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Knowledge and strategies for coping with fibromyalgia.
Larissa Pereira Costa1, Márcia de Assunção Ferreira1
1Universidade Federal do Rio de Janeiro, Rio de Janeiro, RJ, Brasil.
Revista Gaucha De Enfermagem
|October 2, 2024
Summary
People with fibromyalgia often lack knowledge about its causes and diagnosis, leading to misunderstandings and social stigma. Sharing experiences in support groups is crucial for coping with this chronic pain condition.
Area of Science:
- Rheumatology
- Social Sciences
- Health Psychology
Background:
- Fibromyalgia is a chronic condition characterized by widespread pain.
- Understanding patient knowledge is vital for effective disease management and support.
Purpose of the Study:
- To analyze the knowledge of fibromyalgia among diagnosed individuals.
- To investigate how this knowledge impacts their coping strategies.
Main Methods:
- Qualitative study using Social Representation Theory.
- Semi-structured interviews with 30 participants in Rio de Janeiro, Brazil.
- Data analyzed using Alceste software.
Main Results:
- Participants primarily recognized pain symptoms but lacked knowledge of fibromyalgia causes.
- The absence of visible signs led to misunderstandings with family and friends.
- Support groups facilitated shared experiences and coping mechanisms.
Conclusions:
- Subjective pain experiences can lead to distrust and diagnostic delays.
- Insufficient patient information contributes to societal judgment and stereotypes.
- Social prejudice and rejection negatively affect coping with fibromyalgia.
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