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Updated: Jun 11, 2025

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Published on: March 15, 2024
Incidence of Pediatric to Adult Transition Among Tracheotomy Patients
Rebecca Lee1,2, Stephen R Chorney1,2, Yann Fuu Kou1,2
1Department of Otolaryngology, University of Texas Southwestern Medical Center, Dallas, Texas, U.S.A.
Insights
Pediatric tracheostomy patients are more likely to transition to adulthood with their breathing tubes if they are older at placement and have severe neurocognitive disabilities. This highlights the need for specialized transition programs for these individuals.
Area of Science:
- Pediatric Otolaryngology
- Respiratory Medicine
- Healthcare Transition
Background:
- A significant number of children requiring tracheostomy face long-term respiratory support needs.
- Understanding the trajectory of pediatric tracheostomy patients into adulthood is crucial for effective care planning.
Purpose of the Study:
- To determine the incidence of pediatric tracheostomy patients who remain tracheostomy-dependent into adulthood.
- To identify predictors associated with the long-term need for tracheostomy in this population.
Main Methods:
- Retrospective analysis of 663 pediatric tracheostomy patients from a single tertiary care center (2009-2022).
- Comparison of demographics, comorbidities, and tracheostomy outcomes (decannulation, mortality, adult status).
- Logistic regression analysis to identify significant predictors for maintaining tracheostomy into adulthood.
Main Results:
- 15.5% of pediatric tracheostomy patients (103/663) were projected to reach adulthood by September 2023.
- Of those reaching adulthood, 25% remained with a tracheostomy, 34% were decannulated, and 24% had died.
- Predictors for retaining tracheostomy into adulthood included older age at placement (mean 14.3 years), Hispanic ethnicity, not being ventilated at discharge, and severe neurocognitive disabilities.
Conclusions:
- Older age at tracheostomy placement and severe neurocognitive disabilities are significant predictors for continued tracheostomy use in adulthood.
- Specialized transition programs are essential to address the unique needs of pediatric tracheostomy patients entering adult care.
Objective:
To estimate the incidence and identify predictors of pediatric tracheostomy patients who transition into adulthood with a tracheostomy.
Methods:
We conducted a retrospective analysis of pediatric tracheostomy patients treated at a single tertiary care pediatric hospital between 2009 and 2022. Patient demographics, comorbidities, tracheostomy outcomes, including decannulation and mortality rates, and the status of those alive with a tracheostomy at adulthood were compared.
Results:
Of the 663 children who underwent a tracheostomy, 103 (15.5%) would have surpassed 18 years by September 1, 2023. Detailed breakdown: 26 (25%) were alive with a tracheostomy, 35 (34%) had been decannulated, 25 (24%) had passed away, and 17 (16.5%) were lost to follow-up. Patients who retained their tracheostomies into adulthood were more likely to be older at tracheostomy placement (mean age 14.3 vs. 1.7 years, p < 0.001), Hispanic (43.7% vs. 30.5%, p = 0.003), not ventilated at initial discharge (41% vs. 24%, p < 0.001), and have severe neurocognitive disabilities (72% vs. 53%, p < 0.001). Logistic regression identified older age at tracheostomy placement (OR = 1.35, 95% CI [1.24-1.48]) and severe neurocognitive disability (OR = 6.20, 95% CI [2.13-18.09]) as significant predictors of maintaining a tracheostomy into adulthood.
Conclusions:
Older age at tracheostomy placement and severe neurocognitive disabilities significantly predict the transition of pediatric tracheostomy patients to adult care with their tracheostomies. These findings highlight the need for specialized transition programs tailored to the needs of this unique population.
Level Of Evidence:
4 Laryngoscope, 135:1186-1191, 2025.
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