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Transition Guide Dissemination to Foster Patient-Care Team Conversations: A Childhood Arthritis Rheumatology Research

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This summary is machine-generated.

Disseminating transition guides improved young patients' awareness and care team discussions about preparing for adult healthcare among those with rheumatic conditions. This simple intervention showed positive results in a pilot study.

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Area of Science:

  • Rheumatology
  • Healthcare Transition
  • Implementation Science

Background:

  • Pediatric to adult healthcare transition is crucial for young patients with rheumatic conditions.
  • Low uptake of evidence-based transition processes leads to poor patient outcomes.
  • A learning collaborative model was piloted to improve transition guide implementation.

Purpose of the Study:

  • To pilot a learning collaborative model for implementing transition guides in pediatric rheumatology.
  • To assess implementation outcomes, including feasibility, adaptations, and fidelity.
  • To evaluate changes in patient-reported discussions about healthcare transition.

Main Methods:

  • A type II hybrid effectiveness-implementation pilot study was conducted across nine pediatric rheumatology centers.
  • Transition guides were disseminated to patients aged 14+ with rheumatic conditions.
  • Implementation outcomes and patient survey data on transition discussions were collected.

Main Results:

  • Despite COVID-19 challenges, six sites participated, with five contributing outcome data.
  • The proportion of patients discussing transfer planning increased from 39% preimplementation to 55% postimplementation.
  • Significant increases were observed in recalling transition guides (OR 2.58) and discussing transfer planning (OR 2.14).

Conclusions:

  • Disseminating transition guides is a simple, effective intervention for improving patient awareness and care team communication.
  • The learning collaborative model successfully identified adaptable dissemination strategies for various clinical settings.
  • This approach enhances preparation for healthcare transition in young individuals with rheumatic diseases.