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Development and pilot testing of the Population And ContExt adaption of decision aids (PACE) framework
Hankiz Dolan1, Deborah Bateson2, Mu Li2
1Sydney School of Health Sciences, Faculty of Medicine and Health, The University of Sydney, Sydney, Australia.
PEC Innovation
|October 21, 2024
Summary
A new framework, Population And Context adaption of decision aids (PACE), was developed and piloted to adapt patient decision aids for Chinese-speaking migrant women. The adapted aids were acceptable, demonstrating a systemic approach for cross-cultural adaptation.
Area of Science:
- Health Services Research
- Patient Decision Aids
- Health Literacy
Background:
- Patient decision aids (PtDAs) require adaptation for diverse populations.
- Existing adaptation models may not fully address cultural and contextual nuances.
- There is a need for a systematic framework to guide PtDA adaptation.
Purpose of the Study:
- To develop and pilot test a novel framework for adapting PtDAs.
- To adapt contraceptive method PtDAs for Chinese-speaking migrant women in Australia.
- To evaluate the acceptability, usability, and feasibility of the adapted PtDAs.
Main Methods:
- Developed the Population And Context adaption of decision aids (PACE) framework, a six-stage process.
- Incorporated existing models with innovative elements: selection, expert review, pre-testing, translation, needs assessment, and end-user testing.
- Piloted the PACE framework to adapt contraceptive PtDAs, involving 20 healthcare providers and 22 Chinese migrant women.
Main Results:
- Successfully adapted a suite of PtDAs on contraceptive methods.
- Adapted PtDAs were found to be acceptable to Chinese-speaking migrant women.
- Identified lessons learned, including the need for framework flexibility and real-world evaluation.
Conclusions:
- PtDA adaptation necessitates a multi-stage, multidisciplinary, and pragmatic approach.
- The PACE framework offers an innovative and systemic solution for adapting PtDAs for new populations and contexts.
- The study highlights the importance of culturally sensitive and contextually relevant decision support tools.
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