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Updated: Jun 9, 2025

A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting
Published on: January 12, 2018
Phantom data and the potentials of radical caretaking in reproductive health
1Sociology & Center for Science, Technology & Society (CSTS), Drexel University, Philadelphia, Pennsylvania, USA.
Abstract:
The potentials of digital health to improve health outcomes by empowering patients with more control over their health data have transformed into threats of criminalization in the post-Roe era, threats that are creating serious, and at times deadly, harms to patients and the providers that care for them. While patients' health data are increasingly used to criminalize healthcare, data activists, legislators, and lawyers are engaged in radical caretaking strategies to protect health data, patients, and abortion care providers.
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