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Using journey maps to understand patientreported outcome measures in the cancer journey
Jae-Yung Kwon1, Melissa Moynihan2, Angela C Wolff3
1School of Nursing, University of Victoria, Victoria, BC; Institute on Aging and Lifelong Health, Victoria, BC.
Purpose:
The purpose of this qualitative study is to demonstrate the use of patient-reported outcome measure-based journey maps in facilitating clinicians' ability to communicate with patients about their well-being at each phase of their cancer journey.
Methods:
Individual semi-structured online and phone interviews were conducted with older adults in British Columbia, Canada. Participants (n = 6) were asked to describe their cancer experiences associated with their well-being score using the Edmonton Symptom Assessment System revised questionnaire throughout their cancer journey (i.e., pre-diagnosis, diagnosis, treatment, to post-treatment).
Results:
Six older adults who received cancer treatment were interviewed. Six journey maps were developed with evidence of fluctuation in participants' level of well-being through their cancer journeys.
Conclusion:
Journey maps can facilitate patient-clinician communication for tailoring interventions and draw clinicians' attention to additional prompts to better understand patients' well-being throughout the cancer journey.
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