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Peer mentoring program through a digital platform for people with systemic sclerosis: A feasibility study
Yen T Chen1,2,3, Nirali Shah1,3, Mary Alore3
1Department of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI, USA.
Journal of Scleroderma and Related Disorders
|November 15, 2024
Summary
Digital peer mentoring is feasible and acceptable for people with systemic sclerosis (SSc). The program significantly reduced mentee anxiety, showing potential benefits for SSc patient well-being.
Area of Science:
- Rheumatology
- Digital Health
- Patient Support
Background:
- Systemic sclerosis (SSc) presents significant physical and emotional challenges.
- Peer mentoring offers a promising avenue for support by leveraging shared experiences.
- Digital platforms can facilitate scalable delivery of peer support.
Purpose of the Study:
- To evaluate the feasibility of a 16-week digital peer mentoring program for individuals with SSc.
- To assess the potential health effects of this peer mentoring intervention on SSc patients.
- To determine the acceptability and usability of the digital platform for peer mentoring.
Main Methods:
- A one-group study design was employed to assess the 16-week program.
- Mentors and mentees were matched based on SSc characteristics and demographics.
- Feasibility was assessed using established criteria, while health outcomes and platform usability were measured at multiple time points.
Main Results:
- The digital peer mentoring program was found to be feasible, acceptable, and user-friendly for both mentors and mentees.
- Mentees reported a statistically significant reduction in anxiety levels post-intervention (p < 0.001).
- Trends towards improvement were noted in fatigue, pain interference, depressed mood, and resilience, though not statistically significant.
Conclusions:
- Digital peer mentoring is a well-received and feasible intervention for individuals with systemic sclerosis.
- Preliminary findings suggest potential health benefits, particularly in anxiety reduction, supporting its use for enhancing SSc patient well-being.
- This study provides a foundation for future research into digital peer mentoring interventions for SSc.
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