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Peer mentoring program through a digital platform for people with systemic sclerosis: A feasibility study.

Yen T Chen^1,2,3, Nirali Shah^1,3, Mary Alore³

¹Department of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI, USA.

Journal of Scleroderma and Related Disorders

|November 15, 2024

Summary

This summary is machine-generated.

Digital peer mentoring is feasible and acceptable for people with systemic sclerosis (SSc). The program significantly reduced mentee anxiety, showing potential benefits for SSc patient well-being.

Keywords:

Peer mentoring digital platform social isolation symptoms systemic sclerosis

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Area of Science:

Rheumatology
Digital Health
Patient Support

Background:

Systemic sclerosis (SSc) presents significant physical and emotional challenges.
Peer mentoring offers a promising avenue for support by leveraging shared experiences.
Digital platforms can facilitate scalable delivery of peer support.

Purpose of the Study:

To evaluate the feasibility of a 16-week digital peer mentoring program for individuals with SSc.
To assess the potential health effects of this peer mentoring intervention on SSc patients.
To determine the acceptability and usability of the digital platform for peer mentoring.

Main Methods:

A one-group study design was employed to assess the 16-week program.
Mentors and mentees were matched based on SSc characteristics and demographics.
Feasibility was assessed using established criteria, while health outcomes and platform usability were measured at multiple time points.

Main Results:

The digital peer mentoring program was found to be feasible, acceptable, and user-friendly for both mentors and mentees.
Mentees reported a statistically significant reduction in anxiety levels post-intervention (p < 0.001).
Trends towards improvement were noted in fatigue, pain interference, depressed mood, and resilience, though not statistically significant.

Conclusions:

Digital peer mentoring is a well-received and feasible intervention for individuals with systemic sclerosis.
Preliminary findings suggest potential health benefits, particularly in anxiety reduction, supporting its use for enhancing SSc patient well-being.
This study provides a foundation for future research into digital peer mentoring interventions for SSc.