Related Experiment Video
Updated: Jun 6, 2025

Multimodal Protocol for Assessing Metacognition and Self-Regulation in Adults with Learning Difficulties
Published on: September 27, 2020
"You Don't Know What You Don't Know": Parent Perspectives on Navigating Disability-Related Information and Resources
Emily R Lanchak1, Erik W Carter1, Elise D McMillan1
1Emily R. Lanchak, Vanderbilt University; Erik W. Carter, Baylor University; and Elise D. McMillan, Vanderbilt University Medical Center.
Abstract:
We examined the priorities parents hold for their children with disabilities and the pathways through which parents access needed information and resources related to these valued areas. Our sample included 405 parents of children (ages 12 and under) who experienced a diversity of disabilities and varied support needs. Although each of the parents wanted their children to experience an array of formative experiences, the extent to which parents were familiar with local resources related to these important areas was uneven and often low. A constellation of barriers was said to stand in the way of connecting to the information and help they needed. When searching for disability-related information, parents often turned to a combination of sources, including professionals and technology.
Related Concept Videos
Learning Disabilities
Dyslexia
Dyslexia is a...
Intellectual Disability
Nursing Process for Patient and Caregiver Teaching I: Assessment and Diagnosis
It is critical to determine the patient's learning needs during the assessment. Determination of learning needs compounds data...
Nursing Ethical Principles II
Consider the following scenario, which illustrates how these principles are applied in the care of Mr. John, a fifty-year-old teacher diagnosed with metastatic liver cancer.
Initially, Mr. John's...
Health Literacy
Documentation in Long-Term and Home Healthcare Setting
Long-Term Care Facilities

