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How Do Parents Experience Overnight Respite? Parent-Reported Outcomes in Families of Children With Intellectual and
Sarah S Mire1,2, Erik W Carter1,2, Sara Tomek1
1Department of Educational Psychology, Baylor University, Waco, Texas, USA.
Summary
Overnight respite care offers significant benefits for parents of children with intellectual and developmental disabilities, primarily enhancing well-being and relationships. Demographic factors showed minor variations in reported respite impact.
Area of Science:
- Healthcare Research
- Family Support Services
- Disability Studies
Background:
- Overnight respite care is crucial for parents managing children with intellectual and developmental disabilities.
- Understanding the comprehensive outcomes and demographic influences on respite care is essential for optimizing support.
Purpose of the Study:
- To investigate the diverse parent-reported outcomes of overnight respite care.
- To explore potential demographic variations in the impact of respite care.
Main Methods:
- A survey involving 178 parents assessed respite effects on personal well-being, spousal/family relationships, spiritual needs, and activity completion.
- The novel Respite Impact Survey, comprising five subscales, was utilized.
Main Results:
- A high consensus among parents (22/23 items) highlighted benefits in rest, rejuvenation, and relationships.
- Demographic factors like child sex, parent age, and education level showed small-to-moderate differences in reported outcomes.
Conclusions:
- Overnight respite care is widely beneficial, with limited demographic variations observed in this specific cohort.
- Future research should focus on diverse populations to fully understand respite care's varied impact across different families.
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