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Rehabilitation for patients with retinal diseases in Brazil: An exploratory study
Cecília Francini Cabral de Vasconcellos1, Marina Leite Brandão1, Juliana Maria Ferraz Sallum1
1Instituto de Genética Ocular, São Paulo, SP, Brazil.
Purpose:
To evaluate the current scenario of rehabilitation services for people with retinal diseases in Brazil.
Methods:
An exploratory study was conducted between February 2023 and June 2023 using a Google Forms questionnaire that was distributed by patient associations.
Results:
A total of 142 patients, aged 18-80 were included in the study. Forty-eight participants (33.8%) were undergoing rehabilitation, while 94 (66.2%) were not. The main reason for not undergoing rehabilitation was a lack of knowledge about the service (n=41, 43.6%). Healthcare professionals made the most referrals (n=20, 41.7%). Rehabilitation improved the quality of life in 38 (80.9%) participants, and 28 (62.2%) participants were satisfied with the process. There was a statistically significant disparity between patient satisfaction and the locale of rehabilitation implementation. Twenty-three (69.7%) participants who underwent rehabilitation at a specialized center reported satisfaction.
Conclusion:
The rehabilitation process directly increases the quality of life of individuals with retinal diseases. However, despite the availability of rehabilitation centers in large parts of Brazil, most patients with retinal diseases are not acquainted with the rehabilitation process and do not receive referrals for it. Thus, healthcare providers should increase referrals to rehabilitation centers, and public policies should be formulated to raise awareness among the population regarding the availability of rehabilitation services.
