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How Do We Get the Public Into Public Health Research? Learnings and Key Recommendations From Initiating a Community

Carmel McGrath1,2,3, Gemma Lasseter1,4, Noreen Hopewell-Kelly5

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Summary
This summary is machine-generated.

Engaging under-served communities in health research requires dedicated funding and infrastructure for building trust. This study outlines practical steps and recommendations for initiating successful community involvement projects.

Keywords:
PPIUK Standards for Public Involvementcommunity involvementlearningpublic health researchpublic involvementreciprocity

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Area of Science:

  • Public health research
  • Community engagement
  • Health equity

Background:

  • Public involvement enhances research relevance, but engaging under-served communities in health research remains challenging.
  • The COVID-19 pandemic underscored health disparities, necessitating sustainable engagement strategies for under-served populations.
  • Limited guidance exists on the groundwork and processes for initiating community involvement projects in health research.

Purpose of the Study:

  • To outline practical approaches for initiating a community involvement project scheme.
  • To offer key recommendations for engaging under-served communities in health research.
  • To bridge the gap between public health research and under-served communities.

Main Methods:

  • The National Institute for Health and Care Research (NIHR) Health Protection Research Unit established a community involvement scheme in 2021.
  • Four community involvement projects were funded to facilitate researcher engagement with under-served communities.
  • Reflections were captured via quarterly meetings, meeting notes, and email correspondence.

Main Results:

  • The scheme funded diverse projects focused on under-served communities.
  • Building relationships and trust requires dedicated time.
  • Flexibility and short-term community benefits (remuneration, training) are crucial for successful engagement.

Conclusions:

  • Research organizations must allocate funding and resources for building trusting relationships with community leaders and communities.
  • Key recommendations are provided to guide future initiatives for engaging under-served communities in health research.
  • Public contributors were involved in all projects, with two co-authoring the manuscript.