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Ethical considerations for respectful research participant payment processes.

Devan M Duenas1, Elliott Mark Weiss1,2,3, Benjamin S Wilfond1,2

  • 1Seattle Children's Research Institute, Treuman Katz Center for Pediatric Bioethics and Palliative Care, Seattle, WA, USA.

Journal of Clinical and Translational Science
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Paying research participants equitably requires respecting their lived experiences. Implementing flexible, transparent, and culturally humble payment processes enhances inclusion in clinical research.

Keywords:
Research ethicsequitypaymentperson-oriented ethicsrespect

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Area of Science:

  • Clinical Research Ethics
  • Health Equity
  • Participant Engagement

Background:

  • Participant payment is crucial but often overlooks equity and inclusion in clinical research.
  • Lived experiences and social context are vital for fair participant payment processes.

Purpose of the Study:

  • To explore how participant payment processes can be improved for equity and inclusion.
  • To identify methods for demonstrating respect through research compensation.

Main Methods:

  • Conceptual analysis of participant payment barriers.
  • Application of relational ethics and empirical findings on participant respect.
  • Development of actionable considerations for payment processes.

Main Results:

  • Payment processes can create barriers through specific types, delays, or sensitive information requirements.
  • Five key considerations for respectful payment: cultural humility, socioeconomic mindfulness, flexibility, transparency, and open communication.
  • Sample questions provided to guide research teams in modifying payment procedures.

Conclusions:

  • Improved participant payment demonstrates respect, fostering more inclusive research.
  • Equitable payment practices help research respond to diverse community needs.
  • Respectful compensation builds more equitable participant-researcher relationships.