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Patient-Reported Experience Measures in Pediatric Healthcare-A Rapid Evidence Assessment.
C Bartholdson1,2, E Broström1,2, M D Iversen2,3,4
1Department of Women's and Children's Health, Karolinska Institutet, Stockholm, Sweden.
Journal of Patient Experience
|December 11, 2024
Summary
This review synthesizes research on patient-reported experience measures (PREMs) in pediatric care, highlighting a need for more child-centered data. Current studies often rely on proxy accounts, underscoring the importance of direct patient feedback.
Area of Science:
- Pediatric Healthcare Research
- Patient Experience Measurement
- Health Services Research
Background:
- Limited understanding of patient-reported experience measures (PREMs) in pediatric settings.
- Existing research often relies on adult proxies rather than direct child input.
- Need for validated pediatric-specific PREMs grounded in children's experiences.
Purpose of the Study:
- To systematically review the scientific literature on PREMs in pediatric healthcare.
- To identify current knowledge and gaps in pediatric patient experience research.
- To lay the groundwork for developing child-centered pediatric PREMs.
Main Methods:
- Comprehensive literature search across multiple databases (PubMed, Web of Science, CINAHL, etc.).
- Inclusion criteria applied to 316 identified studies, with 68 meeting requirements.
- Analysis of study design, publication trends, participant demographics, and identified experience domains.
Main Results:
- Majority of studies (72%) published 2015-2020, with a European focus (53%).
- Most studies utilized adult proxies and had over 100 participants.
- Identified 311 distinct domains of patient experience, categorized into 14 areas.
Conclusions:
- Significant reliance on proxy reports in pediatric PREMs research.
- Need to prioritize direct child reporting for accurate healthcare experience assessment.
- Foundation established for developing validated pediatric-PREMs based on children's perspectives.
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