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Enhancing Disability Research Through Participatory Video: Reflections on a Brazilian Study.
Veronika Reichenberger1, Loveday Penn-Kekana2, Shaffa Hameed1
1International Centre for Evidence in Disability, London School of Hygiene & Tropical Medicine, London, UK.
Qualitative Health Research
|December 12, 2024
Summary
Participatory video (PV) empowered individuals with disabilities in Brazil to share their healthcare experiences. This collaborative research method fostered community awareness and practical insights, aligning with the "Nothing About Us, Without Us" principle.
Area of Science:
- Community-based participatory research
- Disability studies
- Health services research
Background:
- Growing demand for increased participation of individuals with disabilities in health and social care planning.
- The principle of "Nothing About Us, Without Us" emphasizes self-advocacy and inclusion.
- Existing research often lacks direct input from the disability community.
Purpose of the Study:
- To explore the application of participatory video (PV) as a tool for enhancing the involvement of individuals with disabilities in healthcare research.
- To investigate how PV can facilitate the co-creation of knowledge and empower participants.
- To address healthcare access issues in Arcoverde, Brazil, from the perspective of people with disabilities.
Main Methods:
- A case study utilizing participatory video (PV) in Arcoverde, Brazil.
- Community-based workshops, story circles, and video-making activities.
- Multi-methods research framework focusing on primary healthcare access.
Main Results:
- Participatory video (PV) demonstrated a significant empowering impact on participants.
- Increased community awareness and practical understanding of healthcare issues were observed.
- Participants actively shaped their narratives and contributed to research findings.
Conclusions:
- Participatory video (PV) is a valuable and empowering collaborative tool for individuals with disabilities in health research.
- Ethical considerations, including informed consent and identity protection, are crucial in PV.
- Reflexivity and community engagement are essential for successful participatory video research.
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