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Piloting "From the Inside Out" - a toolkit addressing tuberculosis-related self-stigma.

Stephen H-F Macdonald1,2, Nadine Ferris France3,4, Ian Hodgson3

  • 1School of Medicine, University of Limerick, Limerick, V94 T9PX, Ireland. macdonaldez@gmail.com.

BMC Global and Public Health
|December 16, 2024
PubMed
Summary

This study piloted a psychosocial toolkit to combat tuberculosis (TB) self-stigma, showing initial improvements in knowledge and well-being among participants. Further research is needed to optimize intervention delivery for sustained effects.

Keywords:
Capacity-buildingIndonesiaPsychosocial interventionsSelf-stigmaStigmaTuberculosis

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Area of Science:

  • Public Health
  • Psychology
  • Global Health

Background:

  • Self-stigma in tuberculosis (TB) patients leads to poor treatment adherence and social withdrawal.
  • Existing interventions for TB self-stigma are limited.
  • Self-stigma impacts not only patients but also their families and healthcare providers.

Purpose of the Study:

  • To pilot a psychosocial intervention toolkit to address self-stigma in people with TB.
  • To evaluate the feasibility and initial impact of a training-of-trainers approach for delivering the toolkit.
  • To adapt the toolkit for cultural and linguistic appropriateness in Jakarta, Indonesia.

Main Methods:

  • A training-of-trainers workshop was conducted with NGO staff in Jakarta.
  • Trained staff delivered a psychosocial toolkit via a 4-day participatory workshop to 22 TB patients/survivors.
  • Intervention effectiveness was assessed through self-reported changes in knowledge, efficacy, self-compassion, and psychological well-being.

Main Results:

  • Participants reported significant increases in knowledge and efficacy regarding TB self-stigma immediately post-intervention.
  • Self-compassion and positive relationships with others showed significant increases post-workshop but were not sustained at 3 months.
  • The training-of-trainers model facilitated local adaptation and delivery of the intervention.

Conclusions:

  • The piloted toolkit shows potential for improving TB patients' knowledge, efficacy, and psychological well-being.
  • Further investigation is required to determine optimal delivery methods (frequency, dose, duration) for sustained benefits.
  • Sustained support is crucial for individuals throughout their TB treatment journey.