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Using community engagement with FRAME: Framework for reporting adaptations and modifications to evidence-based

Jordana L Clayton1, Rebecca L Utz1, Nancy Aruscavage2

  • 1College of Social and Behavioral Sciences, University of Utah, Carolyn and Kem Gardner Commons Suite 3725, 260 S Central Campus Dr, Salt Lake City, UT, 84112, USA.

Contemporary Clinical Trials Communications
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Community engagement enhances intervention design by incorporating community insights. Utilizing the FRAME model systematically tracked adaptations for a dementia end-of-life care planning intervention, improving its suitability and fidelity.

Keywords:
AdaptationsCommunity advisory board (CAB)Community-engaged researchInterventions

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Area of Science:

  • Public Health
  • Health Services Research
  • Gerontology

Background:

  • Community engagement is vital for developing effective health interventions.
  • Systematic documentation of community feedback ensures interventions meet population needs.
  • The Framework for Reporting Adaptations and Modifications to Evidence-based Interventions (FRAME) provides a structure for tracking intervention changes.

Purpose of the Study:

  • To demonstrate the utility of the FRAME model in documenting adaptations to a dementia end-of-life care planning intervention.
  • To illustrate how community engagement via a Community Advisory Board (CAB) informed intervention modifications.
  • To ensure the revised intervention is appropriate, feasible, and maintainable for the target population.

Main Methods:

  • Utilized the FRAME model to track adaptations made to a pilot dementia end-of-life care planning intervention.
  • Engaged a Community Advisory Board (CAB) to provide input and guide intervention modifications.
  • Documented the nature, rationale, and decision-making process for each intervention adaptation.

Main Results:

  • The FRAME model facilitated a comprehensive report of iterative intervention changes based on CAB feedback.
  • Adaptations increased the intervention's appropriateness for the target population.
  • Established criteria for monitoring intervention fidelity were developed.

Conclusions:

  • The FRAME model is an effective tool for systematically reporting intervention adaptations driven by community engagement.
  • Community engagement, guided by structured reporting, enhances intervention relevance and fidelity.
  • This process prepared the team for a rigorous clinical trial of the revised intervention.