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A Community-Engaged, Mixed-Methods Approach to Prioritizing Needs in a Statewide Assessment of Community Cancer

Jessica R Thompson1,2,3, Todd Burus1, Caree McAfee1

  • 1Community Impact Office, Markey Cancer Center, University of Kentucky, Lexington.

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Kentucky faces high cancer rates. A community needs assessment identified key priorities like lung cancer screening, smoking cessation, and HPV vaccination, alongside strategies to address disparities and improve access to care.

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Area of Science:

  • Public Health
  • Cancer Research
  • Community Engagement

Background:

  • Kentucky exhibits the highest cancer incidence and mortality rates nationwide.
  • A statewide community needs assessment (CNA) was initiated in 2021 by the University of Kentucky Markey Cancer Center.
  • The final phase aimed to collect community input for prioritizing cancer-related needs and solutions.

Purpose of the Study:

  • To identify and prioritize key cancer-related needs within Kentucky communities.
  • To gather community perspectives on effective strategies for addressing identified cancer burdens.
  • To inform the development of Kentucky's state cancer plan and future research initiatives.

Main Methods:

  • Employed online concept mapping, a participatory mixed-method approach, with 162 participants (51 community members, 111 organizational partners).
  • Utilized survey-based activities to prioritize 80 items derived from CNA findings.
  • Conducted discussion groups to explore focus areas and strategies relevant to Kentucky communities.

Main Results:

  • Concept mapping revealed a 6-cluster solution, highlighting perceived similarities among prioritized items.
  • High-priority areas include lung cancer screening, smoking cessation, human papillomavirus (HPV) vaccination, and addressing social determinants of health disparities.
  • Key strategies involve enhancing health communication, expanding patient navigation, improving access to culturally appropriate information and care, and building patient-provider trust.

Conclusions:

  • The concept mapping process effectively facilitated the prioritization of community cancer needs and actionable strategies.
  • The identified priorities and strategies will guide Kentucky's state cancer plan and future research efforts.
  • Findings provide a roadmap for reducing the state's cancer burden and health disparities.