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Transition clinics in pediatric rheumatology in Colombia: reflection on a necessary shortcomings
Lauren Natalia Ramirez1, María Elisa Hoyos2, Angela Catalina Mosquera-Pongutá3
1Grupo de Investigación Reumavance, Facultad de Medicina, Universidad Nacional de Colombia, Bogotá, Colombia.
Insights
Transition clinics support pediatric patients with chronic conditions moving to adulthood. Successful transition requires patient adherence and informed health perception, yet standardized guidelines are lacking.
Area of Science:
- Pediatric Rheumatology
- Chronic Disease Management
- Healthcare Transition
Background:
- Transition clinics address multifaceted needs (medical, psychosocial, educational, vocational) of pediatric patients with chronic diseases extending into adulthood.
- Understanding is rooted in physiological, psychological, and sociocultural factors influencing morbidity and mortality.
Purpose of the Study:
- To review the history, structure, and impact of pediatric transition clinics, particularly in rheumatology.
- To propose comprehensive reflection and outline guidelines for developing, implementing, and evaluating these clinics.
Main Methods:
- Reflective analysis of existing literature and practices.
- Focus on pediatric rheumatologic diseases.
- Proposal of a framework for transition clinic development and evaluation.
Main Results:
- Transition of care should start in early adolescence, tailored to cognitive ability and involving patient education.
- Interdisciplinary teams are crucial for addressing holistic patient needs within individualized care and family support.
- A significant gap exists in evidence-based, standardized guidelines for implementation and effectiveness evaluation.
Conclusions:
- Successful transition is marked by patient adherence and a positive, informed health perception.
- There is an urgent need for evidence documenting the comprehensive nature and necessity of transition clinic processes.
Introduction:
Transition clinics are conceived as programs dedicated to the active, multidimensional development of a process that addresses the medical, psychosocial, educational, and vocational needs of pediatric patients suffering from a chronic disease that will persist into adulthood. Their understanding is justified in physiological, psychological, and sociocultural terms on the basis of the differential morbidity and mortality associated with a chronic disease that begins in childhood and prevails into adulthood.
Materials And Methods:
Here, we reflect on the history, structure, and impact of transition clinics in pediatrics, with an emphasis on pediatric rheumatologic diseases. Additionally, we propose comprehensive reflection as an alternative for the patient, their family, and the medical team, outlining guidelines for development, implementation, and evaluation.
Results:
The transition of care should commence in early adolescence, considering each patient's cognitive ability as a condition for the initiation of an educational process involving introspection into the disease. Interdisciplinarity is defined as a team that addresses the clinical, physical, emotional, and social dimensions of each patient and their interaction with the environment within the framework of individualized care and family support. Despite this, the lack of evidence supporting standardized guidelines for the implementation and overall effectiveness evaluation of these interventions was highlighted.
Conclusions:
The transition process is considered successful when the patient is adherent and has a positive and informed perception of their health‒disease journey. We urge the generation of evidence documenting the comprehensiveness of processes inherent to transition clinics as the foundation of necessity.
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